Physical Therapy: Past and Present

I received physical therapy every week of my life until I was 16 years old. So, me and PT have quite a history. And to be honest, it isn’t all that pretty. For me, PT was focused on getting me as independent as possible and as mobile as I could possibly be. That meant learning to walk with a walker, then crutches, and eventually independently. With a physical disability, that’s no easy feat. I didn’t walk in any sense until I was 5 or 6, I think…so I was way behind my peers in that respect. However, that’s where PT came in…to provide me with the tools I needed to reach the same level of functioning as my able-bodied peers. As you can imagine, it was hard work, it was painful, and I left every therapy session having cried at least once (or at least that’s how it felt).

The trauma of physical therapy didn’t surface until I had my first surgery at the age of 11. Following my first surgery, after being in long-leg casts for 8 weeks, physical therapists were ready to get my legs moving. Try keeping your legs board-straight for 8 weeks and then being asked to bend your knees. It’s a level of pain I wouldn’t wish on my worst enemy. One of the three most vivid memories I have is one particular day in physical therapy at Shriner’s Hospital for Children in Greenville, SC, following my first surgery. The physical therapist was determined to get my knees to bend. However, up until this point I had fought her every step of the way. She ended up placing a blue-padded bench right behind my knees in the hopes that gravity would do it’s job over the course of an hour and by the end of therapy, my knees would be bent over the bench. Suffice it to say, gravity didn’t win. I held my legs in the air for 90% of my PT session that day. Eventually, the physical therapist put her hands on my knees and pushed down. Because I had held my legs up for almost an hour, down they went and out came my screams. One minute my legs were in the air, pain-free, and the next…my body went into overdrive trying to process the pain that was splitting me open from inside. I cried and screamed so loud and for so long that I remember a nurse coming in asking if everything was okay. Until that moment, I didn’t understand the concept of a blood-curdling scream…and I also didn’t understand what it meant to feel such an intense pain that when you open your mouth no sound comes out at all. Now I know better.

That PT moment occurred at the age of 11. I am now 25, and I can still go back to that moment in my mind in a matter of seconds….and when I do, the tears come, and I can’t stop. I cry for the pain I felt, the level of fear and anxiety that was coursing through me, and the fact that at the age of 25, I can so easily place myself back in that moment without even blinking. To put it bluntly, physical therapy has essentially traumatized me. It still holds a lot of power over me, I still have nightmares, and I still have really intense reactions towards PT.

A few years ago, my doctor suggested I go back to PT again. “It won’t be like last time. This time, when you say stop, they will.” See, as a child in PT, my voice didn’t matter that much. If I said stop, the pain continued. The physical therapists kept pushing. They had to in order to help me get to the point I needed to be. Therefore, a few years ago, when my doctor said it would be different, I didn’t believe him. Even when the physical therapist said, “You’re an adult. You’re in control now,” I had a very hard time believing her. After only one PT session as an adult, I started having panic attacks. Even though I was in a different place, in my mind I was an 11-year-old girl in the PT room of Shriner’s Hospital. I panicked. I couldn’t breathe, and I felt like I was dying. In short, I had a panic attack.

I have not been back to physical therapy since my previous experience as an adult caused panic attacks. However, I’ve reached a point in my life where I feel like I at least need to try going back. I am utterly terrified and just the thought of it makes my heart race and my breath become rapid. How I’m going to go through with it, I seriously don’t know. But I have to try. I owe myself that much. And I just hope the physical therapist doesn’t negatively respond to my panic attack. I can’t have that happening again.

Send good thoughts over the next few weeks. I need them.

11 thoughts on “Physical Therapy: Past and Present

  1. I think it is a different concept than when we were younger. Don’t get me wrong I hear what you are saying. I recently went back myself and the one I am going to even asked me my opinion and what I wanted to improve which was different. Keep in mind everyone is different. You are older now and obviously very smart. They will work with you. You can explain your previous situation to them if you feel the need. I’m sure they will talk with you and be understanding. I’m here if you need someone to vent to.

  2. Thanks for finding me (again!?) … glad to be connected once more. I wish you could find an amazing deep tissue bodyworker who could help you move forward with compassion so you could overcome some of the ptsd. Muscles hold memories, I can say this as a former deep tissue worker myself. At any rate, your journey, Amelia. Congrats on finishing college and wherever life takes you! You look fantastic! ?

    1. Thanks, Bela! So glad I found you again. In regards to the bodywork, I see a massage therapist once every 2 weeks who does deep tissue work. It helps, but only in the moment. I’m also debating trying a chiropractor as well as possibly acupuncture for pain relief.

      1. Yes, Amelia – acupuncture works well for pain – I have two acupuncturist daughters, so I’m a believer! 😀 At any rate, wishing youthe very best, and Happy New Year! 😀

  3. I’m really late reading this, but I hope everything went well and you found a good therapist! I’m so, so sorry that happened to you when you were younger. Sending lots of positive vibes!! ❤❤

    1. Well, I had my initial evaluation appointment. However, that wasn’t completed by the physical therapist who will be my regular PT, despite many phone calls on my part to ensure that was the case. Additionally, I spent over half of the initial appointment time talking about past physical therapy experiences and the trauma and anxiety around it only to be told I would likely have to repeat myself when I saw the woman who’d be my PT. Seriously ridiculous! If my regular PT, who I meet this week, doesn’t immediately give me a better feeling, and I’m out of there and off to find someone better!