Author: Amelia Hall

To Those Who Taught Me To Dream

Amelia Hall # # # # # # # #

When I was little, I wanted nothing more than to be a ballerina. Around Christmastime, my grandmother would take me to see The Nutcracker at the Koger Center. As I sat up in the balcony in my checkered dress and patent leather shoes, I stared with admiration at the character of Clara. I imagined myself twirling around in my own leotard with a toy nutcracker in my hands, lost in the music and a dance that was all my own. When I got home from seeing The Nutcracker, I’d put on my leotard and tutu, grab a favorite stuffed animal at the time, and twirl in circles to the music only I could hear.

It was in those moments, in the safety of my childhood bedroom, that I began to dream, imagining doing things I knew I wouldn’t be able to do in reality due to my disability. I imagined dancing with a grace I had seen only in ballerinas. I put on my ballet shoes and twirled until my unstable balance got the best of me and I fell to the floor in frustration. I even remember asking my parents if I could take ballet lessons, determined to learn how to create the beauty I had seen in the character of Clara. The opportunity never arose though, simply because I didn’t have the balance to be a ballerina. Despite walking on my tiptoes, twirling around in circles on those same tiptoes was out of the question.

As I got older and I filled my head with more realistic dreams, I never stopped imagining doing the things I’d never be able to fully experience. I thought of dancing to the music of my world. I imagined running down the street and feeling the wind on my face as I chased the orange and red sunset I saw in the distance. I pictured myself climbing the huge oak tree in my backyard, wanting nothing more than to find a sturdy limb I could sit on so I could rest my back against the tree’s broad trunk and escape into my favorite book. The creative imagination I possessed placed me right into the worlds I dreamed, though I knew I was so far away from actually experiencing them.

I am forever grateful to the people throughout my life who have encouraged my imagination and dreams. Though I was constantly reminded by other kids around me of the things I was unable to do, so many of the adult figures in my life understood the importance of believing in my creativity. Because of those individuals, I have learned what it means to still hope and strive for the things that still seem a bit out of reach. Through my ability to dream, I developed a determination that has propelled me through my life, despite stumbling again and again. While I may not have had the chance to be a ballerina who twirls endlessly with the grace of a perfect melody, I have sung my heart out at a voice recital, capturing an entire room with the simple sound of my voice. I have participated in theatre productions, achieving my moment in the spotlight by being Glinda the Good Witch in The Wizard of Oz. I have written of specific moments of pain during the months following intense operations, creating the same tears in the eyes of my readers that I possessed during my moments of defeat. Though I may not have had the chance to live the experiences I longed for, I have continued to move to the song of my own life, continuously grateful to those who taught me to dream and create my own destiny.

Categories: Disability4 Comments

The beauty of my worst fear.

Amelia Hall # # # # # # # # # # # # #

I’m afraid of the day when I’ll no longer be able to walk.

I spent my entire childhood learning to walk so I could be as independent as possible, despite my Cerebral Palsy. Before my intense operations, I learned to walk in my own way, my knees knocking together as I put one foot in front of the other. During the years I spent on a t-ball team, I loved the feeling of running to first base. Even though I typically got out before making it to first base, I ran with all my heart just like everyone else on my team. I ran in my own way, but it never stopped me from trying.

After my first operation at the age of 10, I had to completely relearn to walk after having my femurs straightened out and kept in place with rods. One year later, when I got the hardware removed that was placed during my first operation, I had to relearn to walk yet again. See, not walking was never even an option for me. I wanted to be like the other kids my age, and to do that, I had to be able to walk. I had to be as normal as I possibly could. Even when I was faced with physical pain that made me want to curl into myself and give up all together, I kept going. Every day, I literally walked towards my own independence, one step at a time.

Because I spent so much of my life struggling, and ultimately succeeding, to walk, the thought of reaching the day when I’ll no longer be able to walk is completely terrifying. In so many ways, when I reach that day, it will feel like a kind of giving up. Though I plan to walk for as many more years as I can, I am scared of the day when the pain will just be too much, when walking will be putting too much strain on my body. It’s especially frightening because I know how much physical pain I’m in on a daily basis currently. The realization that I am in so much physical pain and I’m only 22 is terrifying. Trying to imagine my level of pain when I reach age 30 is nearly impossible.

That is one great thing about fear though. It has the ability to help us find the determination and strength we didn’t know we had. Yes, my worst fear is seeing the day when I will no longer be able to walk. However, I’m not there yet. I am a long way off from that day. Today, I am able to walk and do the things I love, despite being in pain. Today, I am able to push through the pain, because the result…the view at the top of the mountain…is worth it. The happiness, joy, and pure bliss of the destination weighs so much more than the pain of the journey.

The fear lingers in the back of my mind, the fear of knowing one day I won’t be able to get to the top of Max Patch, my absolute favorite place in the world. However, the fear also gives me the strength and determination I need to continue doing what I love. Yes, one day I may not be able to walk because of the amount of pain I am in. But I’m not there yet. I’ve still got plenty of fight within me.

Categories: Cerebral Palsy, Disability3 Comments

I’m back!

Amelia Hall

After months of trying to remember my log in information for this blog, I’m finally back. Truly, it feels incredible. So much has happened since I have been on this blog, and yet even typing in this semi-constrained white box is the most free I have felt in a long time. Honestly, I don’t remember the last time I sat down to write for myself. Ever since August, my life has been full to the brim with graduate school, an internship, and some form of a life. Though I’ve loved it, it’s been busy, and within the chaos, I’ve somehow drifted away from writing…away from that part of myself that aches to breathe through words…away from the part of myself that I typically keep hidden from the word, unless I’m within the blogosphere (crazy enough).

Well, friends, I’m back…for the long haul. When I first started graduate school back in August, I was so overwhelmed that I thought I had to choose between writing and the growth of my future career as a mental health therapist/social worker. However, by not giving myself writing time over the past six months, I’ve felt more distant from my own life than ever before. So maybe it’s not about choosing one passion over another. Maybe it’s about making room in my life for both passions.

Therefore, this is my attempt to do that. Whether it’ll mean blogging once a week or twice a week, I’m not sure. But, I’m here, and at this point, that’s all that matters. I’m not entirely sure where this blog will go from here, though I do suspect I’ll continue with some Cerebral Palsy posts. After all, it goes along with this blog’s name. Despite the amount of posts I’ve already written about what it’s like to live with Cerebral Palsy, there are always more. Though they’ve lessened over time, there’s still so much to talk about…so many memories I haven’t even attempted to revisit yet. However, due to taking the writing break, I think I’m more prepared to tackle the harder memories now than ever before. So, here’s to future writing, and most of all, here’s to all of you: all the lovely bloggers I’ve connected with over the past 4 years. If you’ve stuck with me from the beginning, I fully appreciate you beyond words. If not…if you’re new to my blog…you’ve come at just the right time.

Categories: Cerebral Palsy, Writing8 Comments

The Femoral Derotational Osteotomy: My Longest Marathon.

Amelia Hall

I published this piece on my first blog on January 13, 2013, and I’ve gotten many responses from parents of kids who are about to undergo this surgery or are just in the beginning stages of discovering whether this operation is best for their child. Therefore, I’d like to post it here on my new site.

*Keep in mind: the experiences discussed in this article are mine and mine alone. I am not a doctor, I don’t have a medical background, and I wouldn’t advise parents to use this article to decide whether their child should not have this operation or not. I invite parents to simply use this piece as a way to better understand what your child might go through.

(Originally published on January 13, 2013)

I was born with Cerebral Palsy. In my case, I was born with my femurs angled inward and my hips tilted forward, and my angled femurs caused my feet to point in as well. Therefore, as a kid, when I would walk, I’d end up tripping over my feet, which made it harder for me to walk properly. On October 8, 2001, I had my first intense operation, a femoral derotational osteotomy. In some ways, it doesn’t seem like that long ago. The femoral derotational osteotomy was an intense operation in which the surgeons straightened out my femurs in order to allow me to walk straight. Rods were also used in order to keep my legs straight, but they would be taken out the following year once everything had fully healed. Even though the operation itself isn’t something I remember since I was asleep, I do remember the conversation I had with the OR nurses before I was put under. When the nurses looked down at me on the operating table and asked me to tell them about my animals, I proceeded to include the names of my pets at home as well as the names of all of my stuffed animals (and I had a lot). The nurses just smiled. They didn’t seem to mind.

When I woke up in the ICU, I had on two long-leg casts that were connected by a bar in the middle. I also had an epidural, so I couldn’t feel the full extent of my pain. However, those first few days in the ICU were spent not eating as much jello as I could manage, but continually getting sick from the anesthesia that had put me under during the operation. Trust me, having a nurse come over with a tube to suck the vomit out of your throat is completely disgusting, but it’s better than having the full taste of vomit in your mouth by waiting for it to come all the way up. Though I did eventually leave the ICU and Shriner’s after my first intense operation, I had to keep those long-leg casts on for the next 8 weeks, and during those 8 weeks, I became completely dependent on my parents. They had to help me shower, help me go to the bathroom, and help me change my clothes among many, many other things. It was only the beginning of the very long road to gaining my own independence.

In many ways, the femoral derotational osteotomy was the beginning of a marathon that would last much longer than just a few days. It was the beginning of the complete hell I would go through over the next 6 years until I reached the age of 15. By the age of 15, I had endured 3 intense surgeries, 15 years of physical therapy, and more pain that I ever thought possible. However, despite all of that, I persevered. I pushed through because I knew it was the only thing that would allow me to be independent. In the beginning, after that first operation, my parents were helping me do everything. I was completely dependent on them. However, by age 15, I was not only independent, I was gearing up to leave home the following year to attend an all-girls’ boarding school in North Carolina. Though leaving home was and always will be one of the hardest things I’ve ever done (not including my operations and all the intense physical therapy that followed them), it was also the best decision I ever made for myself. As with so many other things in my life, I’ve learned from it all, but more than that, I have been able to better understand the person I am supposed to become. Though I would have never imagined that I’d be using experiences from my own life in order to relate to and lift up other kids with CP and other disabilities, it’s beginning to feel like a permanent place I belong.

In the right hands, a memoir is the flecks of gold panned out of a great, muddy river. A memoir is those flecks melted down into a shapable liquid that can be molded and hammered into a single bright band to be worn on a finger, something you could point to and say, “This? Oh, this is my life.” Everyone has a muddy river, but very few have the vision, patience, and talent to turn it into something so beautiful. That is why the writer matters, so that we can not only learn from her experience but find a way to shape our own. -Ann Patchett, afterword of Autobiography of a Face

Categories: Cerebral Palsy, DisabilityLeave a comment

On The Right Road

Amelia Hall # # # # # # # # # # # # # # # # #

This past Saturday, I graduated from college with a Bachelors in Psychology. As I sat in the third row among my classmates, barely viewable among a sea of blue, I was happy. I wasn’t the girl a few seats over who kept having to wipe away her tears. I wasn’t the guy one row in front of me who looked bored, as if he’d rather be any other place than seated among his classmates. I was the girl in the third row whose gaze kept moving back and forth between the keynote speaker and section 4 of the arena where my friends and family were sitting. I was the girl who was soaking up every moment.

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Author and higher education expert, Arthur Levine, was the keynote speaker at my graduation ceremony. At first, when he began discussing the current state of our economy and the degree of technological change within our society, I became bored. These were things I had heard countless times, especially within the bubble of a liberal arts university. However, what he said later made me perk up my ears.

“We need your help as part of the most diverse generation in U.S. history – we need your help to knit together a deeply divided nation,” said Levine. “We need your help in dreaming, designing and developing a new world tied together by technology. … We need your abilities and imaginations to create the first global society in history. … Tomorrow’s going to require leaders who want to help heal a pained nation and a troubled world – you can make a difference. … Making a difference is your birthright.” (courtesy of the UNC Asheville website)

Specifically, the last part of this passage touched me, most importantly the idea of helping to heal and make a difference. In many ways, since I have chosen to pursue my master’s degree in social work beginning in August, I felt as if Arthur Levine was speaking only to me. There were moments in which it felt like he was looking right at me. It was as if he was simply reassuring me that I am moving into the right field, while also moving into a profession that I have a true passion for. Receiving this kind of reassurance, which I assume was not his intention, was one of the greatest graduation gifts I could hope to have been given. It was as if the universe was saying, Yep, you’re doing exactly what you need to be doing, so keep going.

Therefore, rather than processing out of my graduation ceremony with a sense of worry and dread, I held my head high. I smiled because for the first time in my life, I truly felt like I was on the right road to start doing what I’m meant to do. What I also realized was that I’ve been doing just that for the past few years. I have been following my passion of helping others ever since I decided to open up about my experiences with Cerebral Palsy in January of 2012, and that passion has only increased since I have started speaking to elementary and middle schools on the topic of bullying as it relates to my CP experiences. So, though I haven’t started my master’s program yet, I do feel like I have been on the right road for a while now. Truthfully, I think I knew that the first time someone contacted me after reading a blog post of mine to tell me how opening up about my experiences has helped them to better understand what their son, their daughter, or they themselves are going through.

As I continue to enjoy my summer, and specifically focus more strongly on writing my memoir, I’ll push myself forward by knowing that I am helping others. Even if it’s just one person, I am helping that person to become more aware of disabilities. I am helping them to see the one thing that I myself still struggle to see sometimes: Different is beautiful.

Categories: Disability, Education, Writing6 Comments

Sharing My Story: A New Beginning

Amelia Hall # # # # # # # # # #
Photo of Amelia Hall in front of a waterfall

Though this is not my first blog, this is the first blog in which I plan to focus solely on discussing my experiences of living with Cerebral Palsy and the process of getting these experiences eventually published. Specifically, my goal is to raise awareness for Cerebral Palsy and other disabilities and allow others to gain a deeper understanding of what it’s like to live with a physical disability.

To kick off this blog and a new chapter of sharing my story of living with CP with others, here is rough draft of the talk I have been giving to elementary and middle schools in Buncombe County since November 2013:

I was born with Cerebral Palsy, a disability that affects my nerves and my muscles, causing me to walk differently than most people. I’ve had multiple intense surgeries and 15 years of physical therapy. My Cerebral Palsy affects the way I walk because my muscles are really tight and because I don’t have very good balance. Because of being physically different, I was always an outcast in school. I had trouble making friends, and it was hard not having someone who knew what I struggled with on a daily basis. When I walk, it is very evident that I am different, and because of my visible differences, I was an easy target for bullying in school.

I had my first bullying experience when I was in kindergarten. At that age, I had to use canes to help me walk. Because of having to use canes, I wasn’t able to walk very quickly, and there was a girl named Ashley who enjoyed picking on me because she knew I wouldn’t be able to run away from her. Every day on the playground during recess, Ashley came up behind me and pulled my hair. It wasn’t a friendly pull either. She grabbed a fistful of my hair and yanked as hard as she could, laughing as I screamed in pain. She pulled so hard that I couldn’t even try to get away from her. Every day, I came home crying, and every morning, I woke up dreading having to go to school and see Ashley on the playground. I felt like crying when I realized I was completely alone and there was no one willing to stick up for me. One day, my teacher, Miss Sandy, came up to me and told me to hit Ashley with one of my canes to help her realize that what she was doing was hurting me. See, Ashley was mentally disabled, so she didn’t know any better, and hitting her was one of the only ways Miss Sandy knew to make her stop. I never did hit Ashley though. I couldn’t do it. Hitting her would make me just like her: someone who wanted to hurt someone else. I don’t think Miss Sandy really wanted me to hit Ashley though. She was just trying to teach me the importance of standing up for myself. In many ways, it felt impossible. How was I supposed to stand up for myself when it felt like I didn’t have a friend who would stand up for me?

I’ve struggled with forming friendships my entire life. As a kid, I wanted friends more than anything. That’s why I never told a teacher that kids were making fun of me. I became afraid that once I told a teacher, the people who picked on me would call me a “tattle-tale” and the other kids would distance themselves even more. Because I was so physically different from the other kids in my class, all I wanted was to feel like I fit in. In my early friendships, many of the people who became friends with me were my friends out of pity. Even though they didn’t specifically tell me so, I could tell it was true. I could tell by the way they looked at me that they felt sorry for me. When I was young, I kept those friendships anyway because all I wanted was a place where I felt like I belonged. However, many of those friendships didn’t last long because most of the people who had been spending time with me left when they got tired of pretending to be my friend.

It wasn’t until I became friends with a boy named Tommy in first grade that things began to change. Tommy was the first person to visibly stick up for me. He confronted the people who picked on me, telling them it wasn’t okay to pick on someone who couldn’t help that she was different. Tommy’s friends laughed at him for sticking up for me, but he didn’t care. He stuck up for me anyway and was there for me no matter what. Tommy also saw the numerous people who became friends with me because they felt sorry for me. He knew how much that hurt me. Even though Tommy wasn’t disabled, he saw how I cried day after day when another person I thought was my friend just got tired of trying. Tommy’s presence in my life didn’t stop other kids from picking on me, but I began to feel a little less alone. Even now, I don’t have many friends. However, the few friends I do have are incredibly close to me, and I am happy to say that one of those friends is still Tommy.

When I was in fifth grade, I took a required PE class. In my PE class, dodge ball was typically the game of choice. Every week in PE, I was chosen last for dodge ball. I even remember one particular day when one of my friends, Allison, was the team caption. This made me excited because I thought: Yes, finally! I won’t be picked last! Allison will choose me since we’re friends. Each team captain began to choose players, and I waited with excitement for Allison to say my name. I looked towards her with a smile on my face, but my smile faded as I realized she was picking everyone else but me. Finally, it came down to Miranda, a girl who had just broken her leg, and me. It was Allison’s turn to pick, and I started to inch towards her. And then you know what happened? She chose Miranda over me! Miranda, the girl no one liked because she was so mean, and the girl who couldn’t even move as well as me because she had broken her leg. I couldn’t believe it!

I was incredibly sad from being picked last for dodge ball, but you know what? That wasn’t even the worst part. The worst part was seeing a girl named Rachel holding a dodge ball in her hands, a small smile on her face when she saw me, already eager to pelt me in the face with the ball. When the dodge ball game started, I hung towards the back. Despite dreading having to play this game every week, I knew a few tricks. I knew staying along the back wall was the best way to not get out immediately, and I knew I’d be one of the last players remaining on my team primarily for this reason. Therefore, the goal was to simply wait for the rest of my teammates to get out. You would assume the waiting part was easy, but it wasn’t. It was just more time I spent wondering how hard I’d get pelted with a dodge ball. Once none of my other teammates remained and I was the only player left, I allowed myself to look over at the other team. By that point, the other team consisted of six players, and they each held a dodge ball. Six against one, and I didn’t even have my own dodge ball for defense. The players on the other team looked back and forth at each other, trying to decide who would have the pleasure of getting me out. Honestly though, I don’t know why they took time trying to decide. They all knew Rachel had to be the one to do it. Eventually, I looked over at Rachel, staring at her just as hard as she was staring at me. Right before she threw the ball, I saw her chuckle quietly to herself. A few moments later, the dodge ball hit me right in the face. The ball hit me so hard that I lost my balance, falling onto the hard surface of my school’s basketball court. Initially, I could hardly breathe, much less get up off the floor. My PE coach came over immediately to help me up and to scold Rachel for what she had done. However, I doubt Rachel ever got the scolding she deserved because I continued to get pelted with Rachel’s dodge balls throughout my entire fifth grade year.

As I got older, I thought the bullying would stop, but it didn’t. The summer after my sophomore year in high school, I attended a creative arts camp. One day I was walking back from a creative writing class, and out of the corner of my eye, I saw a girl named Lauren imitating the way I was walking. I turned to her and said, “Hey, what are you doing?” “Imitating the way you’re walking,” Lauren said. When I asked her why, she explained that she was supposed to observe and imitate people as an assignment for her theatre class. Even though I told her she hurt my feelings, Lauren didn’t listen. As I walked away, I watched as she laughed and continued to imitate me. I ran back to my room and cried, so sad and frustrated that I was still getting picked on. Even at an older age, getting picked on hurt just as much, if not more. Lauren knew what she had been doing. She saw how I cried in front of her, and yet she still continued to imitate me and laugh at me. I couldn’t understand why she would be so mean on purpose. I ended up telling a staff member about what happened, and she contacted the teacher to find out that the imitation was never a class assignment. The next day, though, something good happened. Lauren did the one thing I never thought she would ever do: she said she was sorry.

Being bullied, either physically or emotionally, is hurtful for anyone, but it’s especially hurtful if someone bullies you for something you have no control over, like a physical disability. My bullying experiences have affected me my entire life. I still remember the details of every bullying experience I’ve ever had. I still remember how alone and broken the experiences made me feel, and how it seemed like the bullying would never stop. Typically, kids in school try to be different because they don’t want to blend in with the crowd. For those kids, it’s important to stand out. In my case, I have always been incredibly different, and all I have ever wanted was to be normal and blend in. However, differences have never stopped me from trying to be as independent as possible. I have Cerebral Palsy, but I am a survivor.

**If you are interested in having me come speak at your school, please have the school counselor at your school contact me via email at: accoonrod[at]gmail[dot]com**

Categories: Advocacy, Bullying, Cerebral Palsy, Disability6 Comments